Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

Moorthy, Lakshmi; Roy, Elizabeth; Kurra, Vamsi; Peterson, Margaret; Hassett, Afton; Lehman, Thomas; Scot, Christiaan; El-Ghoneimy, Dalia; Saad, Shereen; El Feky, Reem; Al-Mayouf, Sulaiman; Dolezalova, Pavla; Malcova, Hana; Herlin, Troels; Nielsen, Susan; Wulffraat, Nico; van Royen, Annet; Marks, Stephen; Belot, Alexandre; Brunner, Jurgen; Huemer, Christian; Foeldvari, Ivan; Horneff, Gerd; Saurenman, Traudel; Schroeder, Silke; Pratsidou-Gertsi, Polyxeni; Trachana, Maria; Uziel, Yosef; Aggarwal, Amita; Constantin, Tamas; Cimaz, Rolando; Giani, Theresa; Cantarini, Luca; Falcini, Fernanda; Manzoni, Silvia; Ravelli, Angelo; Rigante, Donato; Zulian, Fracnceso; Miyamae, Takako; Yokota, Shumpei; Sato, Juliana; Magalhaes, Claudia; Len, Claudio; Appenzeller, Simone; Knupp, Sheila; Rodrigues, Marta; Sztajnbok, Flavio; de Almeida, Rozana; de Jesus, Adriana; de Arruda Campos, Lucia; Silva, Clovis; Lazar, Calin; Susic, Gordana; Avcin, Tadej; Cuttica, Ruben; Burgos-Vargas, Ruben; Faugier, Enrique; Anton, Jordi; Modesto, Consuelo; Vazquez, Liza; Barillas, Lilliana; Barinstein, Laura; Sterba, Gary; Maldonado, Irama; ÖZEN, SEZA; KASAPÇOPUR, Özgür; Demirkaya, Erkan; Benseler, Susa

doi:10.1186/1546-0096-12-49

Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

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Moorthy L. N., Roy E., Kurra V., Peterson M. G. E., Hassett A. L., Lehman T. J. A., ...More

PEDIATRIC RHEUMATOLOGY, vol.12, 2014 (SCI-Expanded)

Publication Type: Article / Article
Volume: 12
Publication Date: 2014
Doi Number: 10.1186/1546-0096-12-49
Journal Name: PEDIATRIC RHEUMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Hacettepe University Affiliated: Yes

Abstract

Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumatic diseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likely be applicable to children with systemic inflammatory diseases.