Two sides of the cancer journey: A qualitative study on the psychosocial supportive care needs in older patients and family caregivers


AYVAT İ., ATLI ÖZBAŞ A.

European Journal of Oncology Nursing, vol.80, 2026 (SCI-Expanded, SSCI, Scopus) identifier identifier

  • Publication Type: Article / Article
  • Volume: 80
  • Publication Date: 2026
  • Doi Number: 10.1016/j.ejon.2025.103078
  • Journal Name: European Journal of Oncology Nursing
  • Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, CINAHL, MEDLINE, Psycinfo
  • Keywords: Caregivers, Health services for the aged, Needs, Psychosocial support systems, Supportive care
  • Hacettepe University Affiliated: Yes

Abstract

Purpose Cancer is a journey that the patients and their families must undertake and navigate together, mutually influencing each other throughout the process. This qualitative study aimed to explore how older patients undergoing chemotherapy and their family caregivers experience the cancer and treatment process from a psychosocial perspective. Methods A descriptive, qualitative approach was employed. Data were collected between October 2022 and March 2023, through semi-structured, face-to-face interviews. Data were analyzed using thematic analysis, with the assistance of Maxqda software. Results Thirty participants (18 older patients and 12 family caregivers) were included. Three main themes were identified: (1) emerging role, (2) interpersonal dynamics, and (3) efforts to adapt. Subthemes varied between patients and caregivers, while five were shared across both groups: indirect communication, anger management difficulties, social disruption, avoidance, and process-oriented meaning-making. Conclusion This study demonstrated that older patients with cancer and their caregivers face significant emotional and social challenges, which often overlap. Tailored psychosocial interventions that focus on enhancing direct communication between patients and caregivers, supporting the management of anger and emotional strain, and reducing avoidant coping strategies may promote healthier adjustment and improve caregiving experiences. Interventions that maintain patient independence while alleviating caregiver burden should be prioritized in future research.