International management platform for children's interstitial lung disease (chILD-EU)

Griese M., Seidl E., Hengst M., Reu S., Rock H., Anthony G., ...Daha Fazla

THORAX, cilt.73, ss.231-239, 2018 (SCI İndekslerine Giren Dergi) identifier identifier identifier


Background Children's interstitial lung diseases (chILD) cover many rare entities, frequently not diagnosed or studied in detail. There is a great need for specialised advice and for internationally agreed subclassification of entities collected in a register. Our objective was to implement an international management platform with independent multidisciplinary review of cases at presentation for long-term follow-up and to test if this would allow for more accurate diagnosis. Also, quality and reproducibility of a diagnostic subclassification system were assessed using a collection of 25 complex chILD cases.