Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)


Kayikcioglu M., Kuman-Tuncel O., Pirildar S., YILMAZ M., KAYNAR L., Aktan M., ...More

JOURNAL OF CLINICAL LIPIDOLOGY, vol.13, no.3, pp.455-467, 2019 (Journal Indexed in SCI) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 13 Issue: 3
  • Publication Date: 2019
  • Doi Number: 10.1016/j.jacl.2019.02.001
  • Title of Journal : JOURNAL OF CLINICAL LIPIDOLOGY
  • Page Numbers: pp.455-467

Abstract

BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).