A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report


KONUKBAY D., GATTORNO M., YILDIZ D., FRENKEL J., ACIKEL C., Sozeri B., ...More

CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, vol.34, no.6, 2016 (SCI-Expanded) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 34 Issue: 6
  • Publication Date: 2016
  • Journal Name: CLINICAL AND EXPERIMENTAL RHEUMATOLOGY
  • Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
  • Keywords: auto-inflammatory disease, outcome instrument, multidimensional, proxy report, familial Mediterranean fever, FAMILIAL MEDITERRANEAN FEVER, QUALITY-OF-LIFE, INITIAL VALIDATION, HEALTH, SEVERITY, QUESTIONNAIRE, CHILDREN, PAIN
  • Hacettepe University Affiliated: Yes

Abstract

Objective. To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.